Owens Co-Sponsors the Huntington’s Disease Disability Insurance Access Act

WASHINGTON, D.C. – Today, Rep. Burgess Owens (UT-04) co-sponsored the Huntington’s Disease Disability Insurance Access Act, a bipartisan bill ensuring Medicare is made available to individuals with Huntington’s Disease, a devastating, degenerative, and hereditary brain disorder causing total physical and mental deterioration.

“Tens of thousands of Americans are currently battling Huntington’s Disease, a devastating and crippling diagnosis,” said Rep. Owens. “It is up to us to ensure every patient receives the best possible care, and we can start by fixing an outdated system. I am proud to support the Huntington’s Disease Disability Insurance Act to waive the five-month waiting period for social security benefits, eliminate the 24-month waiting period for Medicare coverage, and remove barriers to improve patient care.”

Huntington’s Disease affects tens of thousands of people across the United States, with more than 200,000 Americans at risk today. Today, 41,000 Americans are known to have HD, and an additional 200-250,000 children of a parent with Huntington’s Disease have a 50 percent chance of inheriting the deadly gene from an affected parent.

The full text of the bill is available here.


Recent Posts

Jul 12, 2024

Owens Announces DOT Grant Award for Spanish Fork

WASHINGTON – Congressman Burgess Owens (UT-04) announced that the U.S. Department of Transportation (DOT) has awarded a $91,393 grant to the city of Spanish Fork, Utah, for improvement projects at Spanish Fork Municipal Airport. “Utah is leading the nation in innovative and efficient transportation infrastructure, and securing this grant is a testament to our commitment […]

Jul 11, 2024

Owens Nullifies Biden’s Radical Rewrite of Title IX

WASHINGTON — Congressman Burgess Owens (UT-04) helped pass H.J. Res. 165,  legislation to nullify the Biden administration’s radical Title IX rule, which allows men to enter women and girls’ private spaces. “House Republicans will not let ideological extremism erase decades of progress or endanger the future of women’s sports,” said Rep. Owens. “When Title IX […]