Owens Co-Sponsors Bipartisan Legislation to Ensure Medicare Beneficiaries With Rare Hereditary Disease Can Receive Home Infusions
WASHINGTON, DC – Today, Rep. Burgess Owens (UT-04) co-sponsored the John W. Walsh Alpha-1 Home Infusion Act, legislation introduced by Reps. María Elvira Salazar (FL-27) and Chellie Pingree (ME-1), which allows Medicare beneficiaries struggling with the hereditary alpha-1 antitrypsin deficiency condition, or alpha-1 patients, to receive essential augmentation infusions at home.
Alpha-1 patients struggle with a hereditary condition that, without treatment by FDA approved augmentation therapies, may result in serious lung disease in adults and/or liver disease in infants, children, and adults.
“I am a proud co-sponsor of the John W. Walsh Alpha-1 Home Infusion Act to ensure that Utahns in the Fourth District and Americans across the country fighting this life-threatening disease can access the best treatment and therapies in their own home,” said Rep. Owens.
The full text of the legislation is available here.